Well, the Spica came off today, and the brace went on. After 8 long weeks of cheerful endurance, Arden’s Spica cast days are over! We are thrilled and relieved for her finally to reach this milestone. I love the look on Dr. Blumberg’s face reflected in the mirror. This is a big moment for him too.
Arden, her mommy, and Tata (her other grandmother, a.k.a. Hilda Rodriguez) celebrated by going to the Seattle Aquarium. They’ll head home (Anchorage and Orlando respectively) this evening.
Now begins the hard work for Arden to learn to walk again. A while back, my close friend Lori Lambelet faced a similar road to recovery from a broken femur. Lori wrote,
“It is crazy how much she will have to concentrate to walk. But the pictures you share display a very spirited young lady, who is very strong and excited to be free!”
Yes she is! This little ezer has a lot of fight in her. Based on Arden’s determination so far and the prayers of family and friends, I’m betting on her to succeed. After all, “Arden is one tough little kid!”
The latest shorter Spica cast (now above the knee on both legs vs down to the ankle on the problem side) has made a huge difference for Arden. For Avery too. The Anchorage heatwave notwithstanding, they’ve loved playing together outdoors.
Now that Arden is semi-vertical, the girls have also made the happy discovery that they can hug each other again! (See video below.)
This week marks a crucial point in Arden’s recovery. She and Allison return to Seattle Children’s Hospital (SCH) this Thursday, July 11 for the removal of Arden’s Spica cast on Friday, July 12. Since her severe hip dysplasia diagnosis, she’s had 2 major surgeries plus 3 Spicas altogether for a total of 12 weeks!
It’s not exaggerating to describe Arden’s ordeal as a marathon.
If X-rays reveal her hip to be in good shape, she’ll have seen the last of the Spica casts. Dr. Blumberg will fit her for a brace which she’ll still wear 24/7 as she moves into full recovery mode and gets back on her feet again.
Needless to say, we are praying and hoping all goes well.
I hear constantly from friends and family who are praying for Arden and her family and checking for updates as she continues her marathon to recover the full use of her hip and leg. It means the world to us that you are following Arden’s story and are holding her up in prayer until she’s up and running again.
Please join us in praying for a successful visit to SCH this week!
Warm summer days in Anchorage (yes, even in Alaska) are giving Arden and Avery plenty of opportunities to play outdoors, and they are making the most of it. Arden is pressing the limits of the extra mobility her new Spica cast allows. She continues to surprise us all with her readiness to push herself to the next level and to regain her independence.
Nothing passive about this little ezer-warrior!
We are thanking God each day for the fight in her and for her incredibly positive attitude. It’s hard to imagine what she’s endured and is still enduring with such a resilient spirit!
July 12, Arden will be back at Seattle Children’s Hospital for the fourth time when Dr. Blumberg will remove her cast and fit her for a brace. We’re all looking forward to that big moment for her. Who knows what she’ll attempt to do once she’s free of her cast?!
Please do continue to pray for her and for her complete healing as she moves through this final Spica cast stage. And thank you again for your interest, prayers, encouraging messages, and generous support.
Far be it from me to turn down an invitation to a MLB baseball game. Below is the invitation to a Phillies game that Frank sent out to Missio Seminary community, families, and friends. I’m definitely going to this one!
If you live in the Philadelphia area, consider yourself invited.
To all PHANATICS, high and low, near and far, current students, board members, alums, faculty, staff and friends—join the MISSIO family for a Phillies game and tailgate party on 30 July.
The game starts at 7 PM but the tailgate party begins at 5pm. What a great way to enjoy the summer together. This has been a big year in the history of MISSIO Seminary and we need to celebrate together. Let’s have some fun in the sun.
Tuesday, July 30th! 7:00pm Phillies vs San Francisco Giants Citizens Bank Park Plus 5:00pm Tailgate Party
We will all meet at the tailgate party (location TBD) with food, drink and loud music in the parking lot and to get your tickets.
The deadline to purchase tickets is JUNE 25.The cost is only $20 per ticket so please feel free to bring friends, family and neighbors.
As I see it, coming to the game is a MISSIONAL calling!
The Phillies will have a secret weapon this year—my wife, Carolyn Custis James. Why is she a secret weapon?—because wherever Carolyn lives, she sprinkles star dust on the local team and they win the World Series! I am not kidding. When we lived in Southern California, the Dodgers won. When we lived in Florida, the Marlins won. When we lived in Boston, the Red Sox won. And when we lived Philadelphia for grad school, the Phillies won, so her magic works in Philadelphia too. Join us on 30 July and see Carolyn work her magic.
For more information contact: Paul Zazzo Missio Director of Church and Alumni Relations email@example.com
For the record, everything Frank said about me is true. I was even in Chicago when the tide turned for the Cubs in 2016. Still, you need to know that my so-called “star dust” doesn’t work over night. That said, I’m looking forward to a fun evening with Missio family and friends—and a big win for the Phillies. Come join us!
Dr. Blumberg’s progress report following Arden’s recasting on Tuesday, June 11, could not have been better!
He said “her hip looks great” and he is “pleased.” He also said the care of Arden’s cast and skin was “some of the best he’s seen.” Kudos to Alli for that!
Arden has a new pink Spica cast and the freedom to bend both knees, as the cast is from chest to above the knee on both sides. That said, it is still a Spica, and her independent movements remain highly and at times frustratingly limited.
The best part for Arden was that Dr. Blumberg’s team emblazoned a My Little Pony character on the front of her cast (see photo of her cast below). How cool is that!? I’m no My Little Pony expert, although Arden and Avery tried to educate me while I was in Anchorage. Still, if I were to venture a guess, I’d say we’re looking at “Big Blue.” (Somebody correct me if I’m wrong.) At any rate, Arden loves it, and that is all that matters!
On July 12, Arden returns to SCH for the 4th time when Dr. Blumberg will remove this latest and final Spica and fit her for a brace. So four more weeks in a Spica as her healing continues.
Our little one faces a long road to recovery, but we are encouraged by her progress, by her strong and vibrant spirit (she is an ezer-warrior, after all), and by the love, prayers, and support of so many friends and family members. We are thanking God for superb medical care and trusting him for complete healing.
After an unexpected delay of two-weeks, Arden’s recasting is rescheduled for Tuesday, June 11. Seattle Children’s Hospital (SCH) has resolved the air quality problems that forced the closure of their operating rooms and delayed Arden’s recasting. Once again they are open for business.
On Tuesday, Dr. Todd Blumberg will remove the Spica cast Arden has worn with remarkable patience and incredibly good spirits for nearly seven weeks. He plans to replace it with another sightly less restrictive Spica cast (above the knee on both legs). X-rays and a CT scan in the interim show her recovery to be progressing normally.
Any progress is welcome news. But I can tell you Arden won’t like going under again. The fact that SCH lets her choose which flavor (bubble gum, strawberry, etc.) she want to breathe is little compensation for blacking out for the third time. The good news is that her mommy will be right beside her when that happens.
I’ve just returned from two weeks in Anchorage helping out with Arden and her little sister Avery. Three-year-old Avery gave me an enthusiastic report of Arden’s graduation from preschool.
“She got a balloon, a necklace,” [Class of 2019 medal] “a graduation bear, and a ‘terrificate’!”
Arden’s “terrificate” is now prominently displayed on their bedroom wall.
This week, the girls’ other grandmother Hilda Rodriguez (a.k.a. Tata) is in Anchorage from Orlando to help out.
Priceless as my time with Arden and Avery was, it doesn’t remove the seriousness of the battle we’re in for Arden. Every stage comes with apprehension and challenges and demands her resilience. We’ve reached a significant midpoint, but she still faces weeks more of Spica cast, then a brace and physical therapy. Hopefully when we arrive at the finish line, she’ll be up, literally running, and better than ever. But it’s a lot to ask of someone so young. And as I’ve said before, it is a crisis from which any of us who love her would do anything to spare her.
We are grateful for so many who are praying, tracking with us, and who have given so generously to Arden’s GoFundMe. Please pray for safe travels, wisdom and skill for Dr. Blumberg and his team, for Arden’s endurance and healing, and for a positive outcome for Arden.
The month of May brought two significant milestones for Arden.
On May 17 she reached the eagerly-awaited glorious milestone of her 5th birthday! That same day, she graduated from preschool—Class of 2019! She is continuing to do well, despite the limitations of her Spica cast. She even scoots herself around on the floor and remains pretty chipper, considering. So we have a lot to celebrate.
But a third May milestone has been eventful in a way we didn’t expect.
We were moving steadily forward to May 28 and the removal of Arden’s Spica cast and recasting in a less restrictive Spica cast. Then late last Friday, Arden’s surgeon phoned to say they were postponing her recasting. Seattle Children’s Hospital has temporarily closed their operating rooms due to air quality problems. Thankfully, just days earlier, a relative who lives in the Seattle area alerted us that this might happen. See “Fungus Scare Closes Operating Rooms at Seattle Children’s Hospital.” Still, we hoped.
Now we are waiting to hear when Arden’s recasting is rescheduled—could be as early as next week or as late as the second week in June. Three more weeks in this first Spica may change the game plan in other ways if everything looks good with the reconstruction and healing of her hip.
I arrived in Anchorage the day after Arden’s birthday (thanks to two days of cancelled flights out of Philly) to celebrate her birthday again and help support Alli with Arden’s care. The plan was for me to remain in Anchorage with Avery while Alli and Arden traveled to Seattle for the recasting. Obviously, those plans are changing too, and other family members will pick up where I leave off. Good thing we have teamwork going.
We can’t thank you enough for your support, words of encouragement, and for praying for Arden. We hope and pray we’re on the home stretch!
We’ll keep you posted. Please keep her in your prayers.